C³ plans to hold two working meetings annually, one in the spring and the other in the fall. When feasible, we anticipate having one of these meetings each year in-person. Our meetings are open to clinical experts, patients, methodologists, invited industry partners, and other stakeholders interested in Core Outcome Sets for dermatologic conditions.

The first jointly organized CHORD COUSIN Collaboration (C³) meeting took place on January 28-29, 2022 with over 150 attendees. Our most recent meeting, which took place on October 20-21, 2023, had over 250 attendees. 

Please say tuned for more details about future meetings. 

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HECOS Consensus Meeting

Adjacent to Congress of the European Society of Contact Dermatitis (ESCD)

September 3-4, 2024
Dresden, Germany

 

Location: 
DGUV Congress 
Congress Centre of the IAG 
Koenigsbruecker Landstr. 2 
01109 Dresden 
Germany
https://escd2024.com/directions/

 

Registration: 

To register, please download the registration form. Please send the completed form to HECOS.derma@ukdd.de.

 

Agenda: 

Tuesday, September 3, 2024 

Pre-Meeting:  What is HECOS all about? 
14.00-15.00: Introduction to HECOS, methods briefing 

HECOS – Consensus Meeting 
15.00-15.30:  Introduction to HECOS (goals reached so far, eDelphi results) 
15.30-16.30:  Ratification of items that already reached consensus in the preceding eDelphi 
Break 
16.45-17.30:  Small group work 1: discussion of controversial items 
17:30-18.30:  Large group 1: consensus voting 
From 19.00:  Social Dinner (Location TBD) 
 
Wednesday, September 4, 2024 
9.00-10.00:  Small group work 2: discussion of controversial items 
10.00-10.30:  Large group 2: consensus voting 
Break 
10.45-11.45:  Small group work 3: discussion of controversial items 
11.45-12.30:  Large group 3: consensus voting 

 

Who should attend?
Anyone with an interest in hand eczema: patients, health professionals, students, researchers, industry representatives. 

What does participation mean?
Participants must agree to attend both days of the HECOS consensus meeting. For a meaningful discussion and voting, everybody needs to be present on Tuesday from 14:00 to 18:30 and also on Wednesday from 9:00 to 12:30. Participants who are experienced in the development of core outcome sets and are familiar with HECOS do not need to attend the pre-meeting on Tuesday from 14.00 to 15.00. Further exceptions can be made only for patients. 

Will participation be compensated?
As a compensation for their efforts, patients with hand eczema or their caregivers receive an allowance of € 50 after the meeting. The meeting’s sponsor (EADV) will also make it possible to cover reasonable travel fees for patients or their caregivers.

Unfortunately, other stakeholder groups cannot be compensated. Catering at the consensus meeting (but not the social dinner) is covered for all participants.

Local Accomodations

• DORMERO Hotel Dresden Airport
  • 1 km to meeting location, approx. 15 min by foot
  • Rooms from € 49
  • https://www.dormero.de/en/hotel-dresden-airport/
• mightyTwice Hotel Dresden
  • 4 km to meeting location, approx. 20 min by tram
  • Rooms from € 98
  • https://www.twicehotels.de/en/dresden
• Further hotels: https://escd2024.com/hotels/
  
  

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COMET is holding an in-person workshop on the afternoon of Monday, 30th September 2024, at the Edinburgh International Conference Centre, Edinburgh, UK. The workshop will focus on how to include patients in agreeing how to measure the outcomes included in a core outcome set. It will feature a series of short talks and small group discussions. The aim of the workshop will be to explore the facilitators and barriers to patient participation in the ‘how’ stage and to identify suitable methods and resources that may be needed to support them in the process.

The workshop is free to attend however places are limited. If you would like to apply for a place, please send a brief response to each of the following questions to Sarah Gorst, by Friday 30th August:
 

• What is the status of your core outcome set study?
• What experience do you have in relation to the ‘how’ stage?
• What do you feel you could contribute to the workshop?
• How would attendance at this event be beneficial to you?    
   

Best regards,

Sarah Gorst and Paula Williamson, on behalf of the COMET Management Group